For You series
Vayaskon mein autismEk autistic vayask ke roop mein jeena
Ek autistic vayask hone par ek garm, seedhi-saadi guide: ki yeh dimaag ke bane hone ka ek alag tareeka hai, koi beemari nahi, yeh kaise dikhta hai, kyun zindagi mushkil lagi hogi, kya cheezein madad karti hain, aur kab haath badhaayein.
Dimaag ka ek alag tarah se bana hona
Autistic hona yaani aapka dimaag jis tarah banta aur kaam karta hai, usme ek farq hona. Yeh tay karta hai ki aap aawaz, roshni aur chhuan se duniya ko kaise mehsoos karte hain, doosre logon ko kaise padhte hain, aur cheezon ko kaise samajhte hain. Yeh ek farq hai, koi bimari nahi, aur isme aisa kuch nahi jise theek karne ki zaroorat ho. Bahut se logon ko apne baare mein yeh baat bade hone par hi pata chalti hai.
Ho sakta hai aapne saalon tak apne aaspaas ke logon se thoda alag-sa mehsoos kiya ho, bina yeh jaane ki aisa kyun hai. Autism uska ek naam hai. Iska matlab yeh nahi ki aapme kuch gadbad hai. Iska matlab hai ki aapka dimaag ek khaas tarah se bana hai, shuru se hi. Yeh banawat badal deti hai ki aap aawaz, roshni aur baatchit ko kaise mehsoos karte hain. Yeh un chote-chote ankahe niyamon ko padhne ka tarika bhi badal deti hai jo baaki log bas yun hi jaan jaate hain.
Yeh badhne ke tarike ka ek farq hai, koi aisi bimari nahi jo aapko lag gayi ho, aur na hi koi aadat jise aap chhod sakein. Iska koi ilaaj nahi, kyunki theek karne layak kuch toota hi nahi hai. Autistic hona aapke dimaag ke kaam karne ke tarike ka ek farq hai, koi bimari nahi jiska ilaaj chahiye.
Aur yeh baat ek bade vayask ke roop mein pata chalna, jitna zyadatar log samajhte hain usse kahin zyada aam hai.
Aur jaanna chahein to
Lambe samay tak yahi socha jaata tha ki autism sirf bachchon mein, aur zyadatar ladkon mein, hi dikhta hai. Ab hum ise bahut alag tarah se samajhte hain. Autistic vayask hamesha se rahe hain. Bahut se log bas chhoot gaye, khaaskar ve jinhone shuru se hi apni bhaavnaayein chhipana aur apne aaspaas ke logon ki naqal karna seekh liya tha. Badi umar mein khud ko autistic ke roop mein pehchaanna kisi samasya ka der se aana nahi hai. Yeh us baat ka, aakhirkaar, ek naam hai jo aapke banne ke tarike ke baare mein hamesha se sach thi.
Ek autistic zindagi ki shakl
Autism kai tarah se dikhta hai, aur koi bhi do autistic log ek jaise nahi hote. Kuch aam baatein hain: baatchit karne aur doosron ko padhne ke tarike mein farq, aawaz, roshni, chhoone ya banawat ke prati tez samvedansheelta, routine ki aur aage kya hoga yeh jaanne ki sachchi zaroorat, gehri aur man ko baandh lene wali ruchiyan, chhoti-chhoti dohraayi jaane wali harkatein jo aapko shaant karti hain, aur masking, jisme aap apne asli roop ko chhipa dete hain taaki fit ho sakein.
Autistic hone ka koi ek tarika nahi hai, par kuch baatein baar-baar saamne aati hain. Baatchit aisi lag sakti hai jaise ek aisa code jo baaki sabko thama diya gaya aur aapko nahi. Ho sakta hai aap shabdon ko seedhe-seedhe le lein ya koi ishara chook jaayein. Halki-phulki baatchit aapko thaka sakti hai, jabki koi vishay jo aapko pasand hai vah aapme se aasaani se bah nikalta hai. Aawaz, roshni aur chhuan bhi aapko bahut tez mehsoos ho sakti hai. Ek timtimaati tubelight, ek khurdura label, ya ek bhari hui bus sachmuch takleef de sakti hai jab doosron ko mushkil se hi pata chalta hai.
Routine maayne rakhta hai kyunki yeh duniya ko anuman lagaane layak banaata hai, aur koi achanak badlaav poore din ko bigaad sakta hai. Gehri ruchiyan sachchi khushi aur ekagrata ka srot hain. Chhoti-chhoti dohraayi jaane wali harkatein, jinhe kabhi-kabhi stimming kaha jaata hai, sharminda hone ki koi baat nahi; ye aapko tikne mein madad karti hain. Aur bahut se autistic log mask karna seekh jaate hain, apne sahaj dhang ko chhipaakar baaki sabke jaisa dikhne ke liye. Inme se koi bhi kami nahi hai; ye bas vah tarika hain jisse ek autistic dimaag duniya se milta hai.
- Duniya doosron ke liye bani hui lagti hai, isliye aap apna asli roop chhipa lete hain.
- Aap naqal karte hain, muskuraate hain, aur fit hone ke liye apni sachchi pratikriyaayein daba dete hain.
- Yeh sab sambhaale rakhne mein aur-aur zyada taaqat lagti hai.
- Aapki taaqat kam pad jaati hai, to fit hona aur mushkil ho jaata hai, aur aap aur bhi zyada mask karte hain.
Aur jaanna chahein to
Masking aisi dikh sakti hai: kisi phone call se pehle man mein baat ratna, aisi aankhein milana jo sahi nahi lagti, doosron ke chehre ke bhaav ki naqal karna, ya kisi aawaz par apni tez pratikriya ko tab tak roke rakhna jab tak aap akele na ho jaayein. Yeh itni aadat ban sakti hai ki aap khud bhi bhool jaate hain ki aap aisa kar rahe hain. Yahi ek vajah hai ki itne saare autistic vayask saalon tak pehchaane nahi jaate: baahar se yeh mehnat dikhti hi nahi. Andar se, yeh thaka dene wali hai.
Aisa kabhi nahi tha ki aap koshish nahi kar rahe the
Agar zindagi aapko doosron ke muqaable zyada mushkil lagi hai, to iski sachchi vajahein hain, aur unme se koi bhi yeh nahi ki aap kamzor the ya koshish nahi kar rahe the. Rozmarra ki duniya ghair-autistic logon ke liye bani hai. Masking, yaani apne asli roop ko chhipane ki mehnat, sachmuch thaka dene wali hai. Aur jo pehchaan der se milti hai vah aksar saalon tak bina vajah jaane alag mehsoos karne ke baad aati hai.
Sochiye rozmarra ki kitni zindagi ek ghair-autistic dimaag ko maan kar chalti hai: khule-khule daftar, shor bhari mehfilein, yeh ankaha niyam ki aapko saamne wale ki aankhon mein dekhna chahiye, yeh ummeed ki yojanaayein aakhiri pal par badal sakti hain aur aap bas dhal jaayenge. Ek autistic vyakti ke liye, us duniya mein chalna lagataar vah extra mehnat maangta hai jo doosron ko kabhi kharch nahi karni padti.
Masking ek aur parat jod deti hai. Apni sachchi pratikriyaon ko chhipana, poore din, har din, aise tarike se thakaata hai jise kisi aise insaan ko samjhana mushkil hai jisne yeh kabhi kiya hi na ho. Samay ke saath yeh aapko ghis deta hai. Aur agar kisi ne aapko kabhi nahi bataya ki aap autistic hain, to ho sakta hai aapne saalon yahi maana ho ki jo faasla aapne mehsoos kiya vah aapki apni koi kami thi, na ki ek farq. Vah thakaan sachchi mehnat thi, kamzori nahi, aur vah farq kabhi aapki galti nahi tha.
Meera 38 saal ki hain aur Pune ke ek bank mein kaam karti hain. Jahan tak unhe yaad hai, daftar unhe aise thaka deta tha jaisa unke saathiyon ko kabhi mehsoos hota hi nahi lagta tha: ve tubelightein, vah lagataar ki bakbak, vah halki-phulki baatchit jo ve har lunch break se pehle man mein rat leti theen. Unhe lagta tha ki ve bas baaki sabse zyada kamzor hain. Tees ki umar mein yeh jaanna ki ve autistic hain, unki kahani badal gayi. Vah thakaan kamzori nahi thi. Vah poore din khud ko kisi aur ki bhaasha mein tarjuma karte rehne ki qeemat thi. Kuch badlaavon ke saath, shor rokne wale headphone, ek shaant kona, kaam ke baad ki bheed chhod dene ki ijaazat, unke din unhe itna bhaari padna band ho gaye.
Ilaaj nahi, sahara
Madad aapko theek kiye jaane se nahi hoti, kyunki theek karne layak kuch hai hi nahi. Madad hoti hai sahare aur samajh se: khud ko behtar jaanna, apne maahaul ko aawaz-roshni-chhuan ke prati apni hissiyat aur apni routine ki zaroorat ke mutaabiq dhaalna, jahan surakshit ho wahan khud ko unmask karne dena, aise log dhoondhna jo aapko samajhte hon, aur kaam par, padhai mein, aur rozmarra ki zindagi mein uchit, vaajib badlaav maangna.
Sabse kaam ka badlaav seedha-saada hai. Kam autistic banne ki koshish chhod dijiye. Uski jagah aisi zindagi banaaiye jo aap jaise autistic insaan par fit baithe. Yeh khud ko samajhne se shuru hota hai. Dhyaan dijiye ki kya aapko thakaata hai aur kya aapko phir se bharta hai. Seekhiye ki aawaz, roshni aur chhuan aap kitni seh sakte hain aur kitni nahi, aur tika hua mehsoos karne ke liye aapko kya chahiye. Yahan se, chhote-chhote badlaav sach mein farq daalte hain: naram roshni, shor bhari jagahon mein headphone, ek tay routine, yojanaayein badalne se pehle ek chetaavni.
Unmasking, jahan yeh surakshit ho, aapko vah taaqat lauta deti hai jo aapne chhipane mein kharch ki thi. Doosre autistic logon ko dhoondhna, ya bas aise log jo aapko aap jaise hi sweekaar karein, ek aisa bojh halka kar sakta hai jise aap uthaaye hue the aur jaante bhi nahi the. Aur aapko vaajib badlaav maangne ka haq hai, kaam par ya padhai mein, kyunki duniya ka aapke liye thoda jhuk jaana uchit hai, koi khaas ehsaan nahi. Aapko ilaaj ki zaroorat nahi; aapko ek aisi zindagi chahiye jo aapke banne ke tarike par fit baithe.
- Khud ko samajhiye: jaaniye ki kya aapko thakaata hai aur kya aapko phir se bharta hai.
- Apne maahaul ko aawaz-roshni-chhuan ke prati apni hissiyat aur apni routine ke mutaabiq dhaaliye.
- Jahan surakshit ho wahan unmask kijiye, aur jab zaroorat ho tab aaraam kijiye.
- Apne log dhoondhiye, aur kaam ya padhai mein vaajib badlaav maangiye.
Is hafte ek aisi cheez chuniye jo chupke-chupke aapko thaka deti hai, ek shor bhara kamra, saathiyon ke saath ek tay lunch, tez oopari roshni, aur uska ek chhota hissa badal dijiye. Headphone laga lena, ek shaant seat, baad mein akele ek chhoti-si sair. Aap apne hone ki ijaazat nahi maang rahe; aap apna din aise set kar rahe hain ki vah aapko kam bhaari pade.
- Khud ko jaanna: kya aapko thakaata hai, kya aapko phir se bharta hai, aapko kya chahiye.
- Aise badlaav jo aawaz-roshni-chhuan ke prati aapki hissiyat aur aapki routine ki zaroorat par fit baithein.
- Apne log dhoondhna, ve jinke liye aapko khud ko tarjuma nahi karna padta.
- Ek doctor ka sahara, zaroorat padne par ghabraahat ya man udaas rehne ke liye madad samet.
Kab sahara lena sahi hai
Jab rozmarra ki zindagi, kaam, ya rishte ghiste jaa rahe hon, ya jab saath-saath aur mushkilein bhi jama hone lagein, tab jaanch ya sahara lena sahi hai. Ghabraahat aur man udaas rehna autistic vayaskon mein aam hai, aur ek gehri thakaan jise autistic burnout kehte hain samay ke saath jama ho sakti hai. Ek doctor cheezon ki jaanch kar sakte hain, sahara de sakte hain, aur jahan yeh madad kare, ek doctor aisi goliyan de sakte hain jo ghabraahat ya man ki udaasi ko kam karein.
Haath badhaana tab sahi hai jab cheezein usse zyada qeemat lene lagein jitni aap chuka sakein. Yeh tab ho sakta hai jab kaam, rishte, ya bas din guzaarna ghista jaa raha ho. Yeh tab ho sakta hai jab aapko lage ki andar kuch aisa hai jise dekhbhaal chahiye. Madad ke haqdaar hone ke liye aapko tootne ki had tak pahunchne ka intezaar karne ki zaroorat nahi.
Yeh isliye maayne rakhta hai kyunki autistic vayask aksar akele autism se zyada kuch uthaate hain. Ghabraahat aur man udaas rehna aam hai. Ek bhaari, sab kuch sapaat kar dene wali thakaan jise kuch log autistic burnout kehte hain, bhi jama ho sakti hai, bahut lambe samay tak mask karte aur zor lagaate rehne ke baad. Ek doctor poori tasveer dekh sakte hain, aapko khud ko samajhne mein madad kar sakte hain, aur sahara khada kar sakte hain. Jahan yeh madad kare, ek doctor aisi goliyan bhi de sakte hain jo ghabraahat ya man ki udaasi ko kam karein. Ve baaki sahare ke saath chalti hain, uski jagah nahi. Jaldi haath badhaana, tootne ki had par pahunchne se pehle, aapko sabse achchha mauqa deta hai.
Agar sab kuch bahut bhaari lage
Agar kabhi aapko lage ki yeh bojh uthaane ke liye bahut zyada hai, ya aapke man mein aise khayaal aayein ki zindagi jeene layak nahi hai, to kripya turant haath badhaaiye. Aapko ise akele nahi uthaana hai, aur madad se yeh halka ho sakta hai. Aap Tele-MANAS ko, muft rashtriya helpline ko, 14416 par call kar sakte hain, kisi bhi samay, din ho ya raat. Neeche juda crisis card aapko aur bhi log bataata hai jin tak aap pahunch sakte hain.
Ek baat likh lijiye jo aap chaahenge ki koi doctor aapke baare mein samjhe, aur use apne phone mein rakhiye. Kuch aisa jaise "shor bhari jagahein mujhe jaldi thaka deti hain" ya "main mahinon se man udaas mehsoos kar rahi/raha hoon." Shabd taiyaar rakhne se pehli baatchit kahin aasaan ho jaati hai, aur pehli hi sabse mushkil hoti hai.
Aap toote hue nahi hain
Autistic hona sachchi taaqaton ke saath aata hai, aur aapko sweekaar kiye jaane aur apnapan paane ka poora haq hai. Aap toote hue nahi hain, aur aapko koi aur banne ki zaroorat nahi. Khud ko sweekaar karna aur apne log dhoondhna gehrai se maayne rakhta hai. Bharat mein jaagrukta aur sevaayein abhi badh hi rahi hain, isliye sahi sahara aur sahi log dhoondhna achche se jeene ka ek hissa hai.
Saalon tak alag mehsoos karne ke baad yeh maan lena aasaan hai ki autistic hona zyadatar mushkilon ki ek fehrist hai. Aisa nahi hai. Vahi banawat jo duniya ko shor bhara bana deti hai, gehri ekagrata, imaandaari, vafaadaari, ek bhara-poora bheetri sansaar, aur jo aapke liye maayne rakhta hai uski gehrai se parvaah kar paana bhi la sakti hai. Aap ek poore insaan hain, sambhaalne layak samasyaon ka ek jamaavda nahi, aur aapko sweekaar kiye jaane aur ek achchi zindagi ka utna hi haq hai jitna kisi aur ko.
Aakhirkaar yeh kaam khud ko badalne se kam, aur khud ko sweekaar karne, aur ve log aur jagahein dhoondhne se zyada hai jahan aapko khud ko tarjuma nahi karna padta. Bharat mein vayaskon mein autism ki jaagrukta abhi badh hi rahi hai, aur achcha sahara dhoondhne mein sachchi mehnat lag sakti hai, par vah maujood hai, aur vah is talaash ke layak hai. Autism ke ird-gird ki chuppi aur galatfehmi aapke baare mein sach nahi hain. Aap kabhi toote hue nahi the; aap bas ek aisi duniya ka, aur kuch aise logon ka intezaar kar rahe the, jo fit baithein.
Yaad
Apni jagah kamaane ke liye aapko aur zor se mask karne ya khud ko kam hone ki zaroorat nahi. Autistic hona ek farq hai, koi kami nahi. Vah zindagi banaaiye jo aap par fit baithe, ve log dhoondhiye jo aapko samjhein, jab zaroorat ho tab aaraam kijiye, aur jab madad kare tab sahare ki taraf haath badhaaiye. Yeh haar maanna nahi hai. Ek achchi autistic zindagi asal mein aise hi banti hai.
Vahi dimaag jisne kisi aur ke liye bani duniya mein thakkar chhipna seekha tha, samajh aur sahi logon ke saath, thos zameen par khada hona aur khulkar khud bane rehna seekh sakta hai.
Aapke saath khade hain
Agar is sabka bojh kabhi aise khayaal le aaye ki zindagi jeene layak nahi hai, to kripya haath badhaaiye, akele zor lagaate mat rahiye. Aap Tele-MANAS ko, muft rashtriya helpline ko, 14416 par call kar sakte hain, kisi bhi samay, din ho ya raat. Neeche ka crisis card aapko aur bhi log bataata hai jin tak aap pahunch sakte hain.
Is hafte ek chhoti-si jagah dhoondhiye jahan aap poori tarah khud bane reh sakein, koi masking nahi, chaahe das minute ke liye hi. Ek shaant kamra, ek shauq jo aapko pasand hai, kisi aise insaan ko ek message jo aapko samajhta hai. Dhyaan dijiye ki tarjuma na karna kitna alag mehsoos hota hai. Vah ehsaas ek zindagi uske ird-gird banaane ke layak hai.
Yeh jaankari kahan se hai
Yeh guide samajhne mein madad karti hai. Yeh nidaan nahin hai. Uske liye doctor se milein.